Prune Belly Syndrome Network
P.O. Box 16071
Philadelphia, PA 19154

855-ASK-PBSN

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or contact individual board members below:

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BOARD OF DIRECTORS                                                                                                       

Maryann-and-kids
President
Maryann Hall
Pennsylvania
Mhall@prunebelly.org


debbie-apgar
Vice President
1st Chair – Fundraising
Debi Apgar
New Jersey
Dapgar@prunebelly.org

Julie-Cammisa-Silver-VP-Branding
Vice President
2nd Chair – Branding
Julie Camissa Silver
Ontario, Canada
JCamissa@prunebelly.org

Loretta-Davis
Treasurer
Loretta Davis
Ohio
LDavis@prunebelly.org

Cyndi-Secretary
Secretary
Cyndi Kabza-Gutirrez
California
CKabza@prunebelly.org


Patrick-Parks-Trustee
3rd Year Trustee
Convention
Patrick Parks
Texas
Pparks@prunebelly.org

Erin-Willis-Trustee
2nd Year Trustee
Fundraising
Erin Willis
Texas
Ewillis@prunebelly.org

Bill-Davis-Trustee
1st Year Trustee
Branding
Bill Davis
Ohio
Bdavis@prunebelly.org

Derek-Carter-Ambassador
Ambassador
Derek Carter
Georgia
Dcarter@prunebelly.org

Max-Difrisco-Jr-Ambassador-pic
Max DiFrisco
Junior Ambassador
Illinois
mdifrisco@prunebelly.org


Interested in Participating with Research

Genetic EMMA.SANCHEZ@childrens.com

Birth Defect http://www.birthdefects.org/registry/

Nurse Consultant: Rachel Moehlmann                                                

MEDICAL ADVISORY                                       

Dr. Linda Baker  Children’s Medical Center Dallas

Dr. Anthony Balcom  Children’s Hospital of Wisconsin                                                                                               

Dr. Andrew Freedman  Cedars-Sinai Medical Center

Mailing Address

Prune Belly Syndrome Network, Inc., PO Box 16071, Philadelphia, Pa 19154, USA