The PBSN is currently assisting with THREE research studies about the genetics of prune belly syndrome!
First, we are looking for families with more than one family member with prune belly syndrome (including extended family). We are also looking for families with 1 boy with PBS with unaffected brother(s). Please write to firstname.lastname@example.org if you have any questions, or contact the researcher directly to participate.
Also, prior to our 2012 convention in Orlando, Florida, please visit the Birth Defect Research for Children, Inc. site and add your family to the National Birth Defects Registry! See their site for full information about confidentiality and an explanatory slideshow. This organization has plans to compile information about PBS and present it to our 2012 convention group. Every family that participates contributes to “what we know” about PBS, so add your family today!
Together, we are working to find the cause of prune belly syndrome!