About the PBSN
Welcome to the Prune Belly Syndrome Network, Inc. We are a volunteer organization serving people who have prune belly syndrome (also known as Eagle-Barrett syndrome) and their families and friends. We advocate for a greater awareness of PBS among the general public and the healthcare community.
MISSION STATEMENT: The Prune Belly Syndrome Network, Inc. (PBSN) is a volunteer-led, Internet-based corporation devoted to disseminating timely and accurate information about prune belly syndrome to people born with it and their family members, physicians, and other interested parties. The PBSN provides a means for clients to share experiences and support one another. We encourage the establishment of international standards for the diagnosis and treatment of prune belly syndrome, also known as Eagle-Barrett syndrome. The PBSN is registered as a 501(c)(3) non-profit organization with the United States Internal Revenue Service.