Prune Belly Syndrome Network, Inc.

PO Box 3914
  Oshkosh W.I.54903-3914
"You are NOT the only one!"

Welcome!

Here you will find a collection of information about Prune Belly Syndrome which is also known as Eagle-Barrett Syndrome. The Prune Belly Syndrome Network, Inc. provides support for those who have Prune Belly, their families, friends and the health care professionals who treat them.

The information contained in this site is designed to enhance, not replace, the relationship that exists between our visitors and their existing physicians.

Support the PBSN

order your bracelet today

Read Our Stories


* Frank

* Kurt

* Jacob

* Mason

* Jake

* Joey

* Luke

* Meryck

* Elijah

* Rowdy

* Zachary

The Prune Belly Support Network is a 100% volunteer organization devoted to patient support and to education of the medical community about Prune Belly Syndrome.

We host an annual convention where patients and parents of Prune Belly children can meet face to face to share information and learn from clinical specialists the latest treatment options available to those effected by PBS. For News and Updates on Convention 2008, go to http://www.prunebelly.org/conventionnews.htm.

COUNTDOWN TO CONVENTION!

Each year our numbers are growing. Fundraisers are held annually. For more information on our fundraising efforts and where the money goes, see our *NEW* Fundraising page HERE.

To view a schedule of Frank Walker's concerts in NY
(including the benefits for PBS), click on his photo below!

MISSION STATEMENT~ The Prune Belly Syndrome Network is a volunteer-led, Internet-based corporation devoted to disseminating timely and accurate information about Prune Belly Syndrome to patients, family members, physicians, and other interested parties. The PBSN provides means for patients and relatives to share experiences and support one another, thereby improving our medical care. We hope to encourage and establish standards for the diagnosis and treatment of Prune Belly Syndrome, as well as foster biomedical and other pertinent research.

PBSN Brochure:
English
Espanol
The PBSN is a member of the following organizations:
The Genetic Alliance
National Organization for Rare Diseases, Inc.
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PBSN
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