Prune Belly Syndrome Network, Inc.

PO Box 3914
  Oshkosh W.I.54903-3914

"You are NOT the only one!"

Check out the NEW and improved Support Forum HERE.

Come to Dallas, Texas for the

until Convention 2009! Register NOW !
Meet others affected by PBS and learn from the speakers.
For more about it and to download registration form, go HERE.

New way to support the Prune Belly Syndrome Network!
Get yours now by e-mailing your order here.
Click on image below to view larger.
Support the PBSN

order your bracelet today

Read Our Stories


* Frank
* Kurt
* Jacob
* Mason
* Jake
* Joey
* Luke
* Meryck
* Elijah
* Rowdy
* Zachary
* Damian
* Ethan
* Miller

Window Clings are 5"x5"
$3.00 each



Magnets are business card size
$1.50 each

Welcome!

Here you will find a collection of information about Prune Belly Syndrome which is also known as Eagle-Barrett Syndrome. The Prune Belly Syndrome Network, Inc. provides support for those who have Prune Belly, their families, friends and the health care professionals who treat them.

The information contained in this site is designed to enhance, not replace, the relationship that exists between our visitors and their existing physicians.

The Prune Belly Support Network is a 100% volunteer organization devoted to patient support and to education of the medical community about Prune Belly Syndrome.

MISSION STATEMENT~ The Prune Belly Syndrome Network is a volunteer-led, Internet-based corporation devoted to disseminating timely and accurate information about Prune Belly Syndrome to patients, family members, physicians, and other interested parties. The PBSN provides means for patients and relatives to share experiences and support one another, thereby improving our medical care. We hope to encourage and establish standards for the diagnosis and treatment of Prune Belly Syndrome, as well as foster biomedical and other pertinent research.

PBSN Brochure:
English
Espanol
The PBSN is a member of the following organizations:
The Genetic Alliance
National Organization for Rare Diseases, Inc.
hlbutton

PBSN
is rated with icra

RDR Graphic
This site is a member of the
Rare Diseases Ring

Previous | Next | List | Join?

Search the Internet for medical resources
with MedHunt

Directory of Health

 

We use www.surveymethods.com for our online survey projects. SurveyMethods.com Online Survey Software is a comprehensive survey creation, deployment, and analysis tool. Click here, www.surveymethods.com, to obtain more information for your educational institution or and non-profit organization.

Send comments or questions to webmaster@prunebelly.org

*

medindex